Tuesday, November 4, 2008

We're in Chicago

Spencer getting "hooked up."

Well, we have arrived at Rush University Medical Center in Chicago. We are about two miles from Grant Park where they are expecting close to a million people to descend to see Obama give his speech later tonight. It's been really crazy here today.

We arrived  yesterday afternoon and checked in at our hotel. It's about .2 miles from the front door of the hospital so that is really great because we can walk if we need to but they also have a shuttle.

They didn't have a bed for Spencer until today so we were admitted this morning. They have him hooked up to the EEG and have started his IV so they can inject the neurolyte if he has a seizure. We are sleep depriving him tonight and taking him off his meds tomorrow morning. We are praying specifically he will have a seizure tomorrow after 10am and before 3pm and that it won't be  a status seizure. It feels weird to pray for a seizure to happen when for years all I've prayed is for him not to have one. 

We met the doctor today and he was really awesome. I feel confident he will definitely be able to help Spencer. 

So far Spencer is doing great. He didn't enjoy the blood work or getting the IV but he is very much enjoying laying around in his PJ's, watching movies and playing video games. The party will be over when I make him start homework in a little while :-)

Thanks to everyone for your prayers and encouragement. I will try to update you again tomorrow.

Amy

8 comments:

He And Me + 3 said...

Oh, I am praying! What a trooper he is.

ocean mommy said...

Hey my friends!

I'm praying and believing God to continue to clear this road for you all!

Hugs and Blessings,
stephanie

Andrea @ Mommy Snacks said...

Lifting up your fam tonight!

Pamela said...

Praying that God will be with all of you as you go through this. We leave Sunday for Nate to go through his tests. We, like you, are praying that Nate will have the kind of seizures that they have not recorded before. The seizures are manifesting themselves in ways that they never have before. Scarey, but as I always sign our CarePages...IN HIS GRIP!

Thank you for being an advocate and helping to get the word out about Epilepsy. This family appreciates all that you do.

Karen Carlyle said...

The teachers and staff of BCA are praying for Spencer, your family, and the doctors each morning. Please give him a BIG hug for me and tell him I love him. I can't wait to see the miracles God has in store.

Laurie Ann said...

Praying praying praying! He's such a strong little guy, isn't he?

Tina said...

We Love you guys lots and are praying with and for you! What an awesome blog - Signs, Miracles and Wonders :o)

Myles wants Spencer to know he is missing him VERY MUCH!!

The Plemmons Family
Mitch, Tina and Myles

Missy @ It's Almost Naptime said...

DId he have a seizure when he needed to?